Sunday, April 15, 2012

April 15th 2012

 I haven't quite known what to say lately so I'll just start. Two months ago I lost my best friend. Whatever words I say or write will never do her justice. We met in 1999 and spent little time apart after that. I loved Erin more than anything and I will always cherish her.
 So many people have sent notes, called, or visited and for that I am grateful. I haven't exactly gotten too busy giving individual thanks and I don't know if I ever will. But thanks to all for everything. I means a lot to me and it is going to be a difficult road ahead.
 I am not planning on making any more entries to this blog. I will try to blog at an old blog site I started a few years ago.  www.nolagrenon.blogspot.com/

Tuesday, November 8, 2011

Nov 8, 2011

Nine years ago today I married Erin. What a wonderful woman. Erin was the best thing in the world for me. She kept me grounded, directed, motivated, centered, fed, clothed, and loved. She always made sure my clothes matched and weren't wrinkled. Today is a tough one for me. Erin and I always seemed to have things go our way. A successful marriage isn't something that happens by mistake, it takes hard work and the ability to work together. Erin woke up everyday making a conscience decision to have a good day. I love her more today than I ever have.

I am sorry for the infrequent updates. There really hasn't been much to say. Erin remains at home I am so thankful for the help that I get in taking care of her daily.

Tuesday, September 13, 2011

House Call 9/13/11

Last night Erin got a special house call from Dr. Brennen. Any time he comes to see Erin he brings his bag of medical equipment and gives Erin a complete examination. His rates are reasonable and he accepts payments in raisins and yogurt so I can't complain.







Sunday, August 28, 2011

August 28th Update

 Well I am sorry that I haven't blogged in awhile but there hasn't been much to blog about. Erin's condition remains the same. No good news, no bad news. Erin's school has started recently and she would be so upset to be missing all the kids coming back to school.
 Along with Erin's family and friends we are into a good routine with Erin's care. It is quite an undertaking and I am thankful that she has not had to go to a nursing home for care.

I put one of our dogs on Erin's lap the other night and he looked so content that I had to take a picture.

Monday, July 25, 2011

July 25th Update

 No real reason to post too often it seems lately. There really isn't any news, good or bad and taking care of Erin consumes most of my free time. Thankfully Erin's friends and family have helped out and offered me opportunities to run to the store or catch a beer with a friend every now and then. It feels so weird that just yesterday Erin and I did whatever we wanted pretty much on a whim and now a relief must be arranged for me to go to the grocery store. I'm not complaining, just making an observation on how it is such a departure from our lives together. This situation is a testament to the fact that no matter how well planned things are they sometimes get flipped around. We led such a "free spirit" lifestyle and I am forever grateful to the memories and experiences we have made together.  
 I, along with everyone else that was fortunate enough to know Erin miss her dearly. It is so hard to watch her live like this without any communication or social interaction. I can only do so much, but the simple things that I can provide for Erin are done without reservation and I only hope that she continues with as little pain and suffering as possible. It seems that with her being home she can regain some dignity, although it is more than likely for me and her family as she continues to have little or no awareness. I remain positive , but I have come to grips with the severity or Erin's injury and the gravity of her situation. It is so difficult to hear the pure optimism of some who almost guarantee that Erin will be as good as new, when no doctor has ever remotely suggested that. I wonder how often it is that people tell you what they think you want to hear instead of saying what they actually think? This goes on in everyday situations where people say pleasant things to avoid any unpleasantness or being uncomfortable, it's human nature. I hope for the best, but have tried to prepare myself for the worst. It's not that I don't believe in miracles or miraculous recoveries, simply that waiting for a miracle when one isn't on the way can leave someone unprepared for reality when it doesn't happen. One of Erin's doctors explained it like this, "things don't always end up the way we want them to or like they do in the movies." I will continue to keep my chin up, love, and take care of my wife no matter what comes our way. She has taught me so much about myself and life in general. I am forever grateful to her for these things. I am also so grateful to those that have helped us so much in this time of need. You have made some things much less worrisome, thank you. Well if you made it this far, thanks for reading. My posts will surely be less frequent, but I will continue to update whenever there is news or the urge strikes.

Friday, July 15, 2011

July 15th Update

 Erin has been home for 8 days now and we are getting into a routine. Erin is stable the swelling comes and goes. Thanks to the friends and family who have come by and offered a helping hand or just sat and talked or shared a beer. Our house revolves around Erin's schedule and that fluctuates day to day.  Although it was a little intimidating at first I am confident that with some help I can handle it for awhile. Erin is in good hands during the day as her nurse is getting into the groove of managing her care during the day. I am looking forward to my Mom, Sister, and Nephew coming in for a visit this weekend. My Mom has never hesitated to jump right in and help out and I will be grateful to have her spending the weekend.  

Friday, July 8, 2011

First Night Home

 Well Erin was brought home last night at about 6:30. It was a hectic day with running all over town multiple times picking up prescriptions, meeting with the hospital, and picking up last minute items for Erin. It was a bustle of activity and I can say that, while bittersweet it did feel good to have her cross the threshold into the house we have built into a home. The next few days will be learning Erin's routine and combining it with mine. Hopefully I can become a little more proficient at the whole turning, changing, feeding thing that will happen all throughout the night. Last night went pretty well I think for my first solo gig.
Here is a picture of me cutting off those cursed bracelets Erin has had on for the last 4 months, I don't know if they bothered her but they drove me batty.

Thursday, July 7, 2011

Erin is Coming Home

Well it has been 113 days since Erin has been home. Our world is now completely different than it was, but if you are reading this you probably already know that. I start this day filled with emotion. I am happy that Erin will be home, but sad that it is under the circumstances. I am confident that I have the friends and family that will help me adequately care for Erin, but I am anxious that I may stumble along the way. I guess I 'll figure it out. Thank goodness I have had all the help along the way because I don't have to figure everything out myself. It is because of this tremendous support that I am able to get Erin home today to a house filled with love and support for our girl.
 Well sorry to cut it short but there is still a ton of stuff to accomplish today. It will not be until this evening that I will be getting her home. There are still contractors working and supplies coming in to organize and arrange. I'll keep you posted.

Wednesday, June 29, 2011

June 29th Update

 Everything is coming together for Erin's move home. It looks like I will get her home late next week if everything goes well. She continues to have some swelling and the doctors are aware and monitoring it. All of Erin's home health equipment was delivered and set up yesterday. I was going to try and set up a bed in the room with her, but I'm not quite sure there is enough room. I'll figure it out. I was joking with someone, I feel like goldilocks I've slept in every bed in my house trying to pick out the best one. My dogs are super confused I keep changing bedrooms.  
 The contractor is moving along nicely he has done many renovations for the handicapped and is very well versed in what needs to be done in ordered to make the home more accessible. I just can't get interested in any aspect of it, other than functionality. He asks what color and I just shrug and tell him to pick one. Thanks for all the offers of help on the renovations, I just can't organize anything, I just needed someone to do the whole deal turn-key, kinda quickly too.

Sunday, June 26, 2011

Sunday June 26th update

Erin got a special visitor on Friday evening. Her nephew Brennen came by to see her. He is always so sweet and it is nice to see how innocent kids can be sometimes. He simply sees his "nan".
 Erin is doing alright, fighting an infection.

Wednesday, June 22, 2011

June 22nd Update

 Erin isn't doing too hot. She had a CT scan yesterday to try and determine what is going on. Erin is having some swelling in her head from a build up of excess cerebral spinal fluid CSF. She will go to Ochsner's main hospital tomorrow and be seen by her original neurosurgeon. Hopefully it is a simple adjustment of her VP shunt. She is sick and hopefully we will have an idea of what is going on tomorrow.
 Everything is coming along nicely to get Erin moved home in the next couple of weeks. One can only imagine the process it is to make a home ready to take care of someone in Erin's condition. I still have a ton to figure out about giving Erin the proper care that she requires. It seems like end up repeating the phrase,"I'll figure it out" about 20 times a day. Heck, it has worked so far so I will just let that be my motto for now. Thankfully with a little help I have been able to get almost all of Erin's 'big" medical equipment lined-up so that is one less worry. I must say that I have had really good luck navigating the insurance speed bumps to get these things done efficiently.
 I have been told that this is a series of peaks and valleys but it sure seems to be more valleys than peaks lately. Erin and I were supposed to have spent the last week at a beach house we had rented, it seems like that those plans were in a different life and in a way I guess it was. Things have changed and plans get canceled, that is life. I am okay with that. Tomorrow is a new day and with it a new set of challenges. I'll figure it out.    

Sunday, June 19, 2011

Thank you

I could not possibly fully express my feelings and thoughts about the Evening for Erin event but I will start with amazing and overwhelmimg. The 650 plus crowd drew many of Erin's medical staff, family and friends from near and far, some we see often and some we have not seen in many years. Yet ALL so special to us and in some way touched by Erin and her story. Since the accident, days and nights are difficult, your faith challenged, and you often wonder how you willl get through to the next moment. Yet I realized from the spirit of last Thursday night, we are making it thanks to an incredible amount of love and support. I never knew that such joy could exist in the midst of so much uncertainty and sadness. We know we are not alone and are in it together as Team Erin!
I would like to thank everyone who helped plan, organize, volunteered, donated, worked and attended the night. And a very special thanks to a dedicated group of chipmunks, who came through in true green and white fashion. This event would not have been such a success without each of you. This all started as a small idea that turned into a passion of the heart, many people hopped on board and stepped up for different reasons but all for the same, their love for Erin. It certainly showed that night.
A heartfelt thanks to the Blessey Marine crew for an incredible job at the Fishing Rodeo last Saturday. It was a great team effort by a special group of people who know what family is all about. We could never thank you enough for all of your compassion and care. I know Erin is so proud and humbled by your support.
We remain strong and hopeful for the future. Through faith and prayer, we continue to believe that God is on our side and will bring us peace, comfort and healing for Erin.

Wednesday, June 15, 2011

June 15th Update

Erin is coming home. It isn't great fanfare and it certainly isn't a victory. there just simply isn't much that can be done with an unresponsive patient. I am going to take her home and make her as comfortable as possible. I will work with her and give her whatever therapy I can. I will meet with a contractor and get working on a few modifications to our house. I will get her room set up and she can have her dogs on her lap. Unfortunately Erin has mountains to climb and maybe with time can gain some consciousness. I am hoping to have all the necessary equipment and modifications for the first part of July. Once she is home I will hire in home care while I work and will need to lean on her friends and family to help in the evening. I am thankful to know that I will not be dealing with this alone. My Mom left for home today after helping out for the last week. It was nice to have some time with her and she is a strong woman how has dealt with her fair share of tragedy, much like many of you. I continue to learn everyday. Thank again to all for the thoughts and prayers.  

Monday, June 13, 2011

Monday June 13th Update

 Okay sorry for the blog neglect. Wow, did I have a great, busy, moving, and overall wonderful last few days. Erin's two benefits were both huge successes. Everyone involved did a great job getting organized, they worked their tails off to make 2 special occasions that will go down in the books!
 Erin is settled into her new temporary home at Ochsner's Elmwood facility. They seem to have a great team working for Erin. I am sad that she had to leave Touro, but hopeful that we can get her back in due time. She misses her "girls" and morning wake-ups. Erin is in room 323. There are no set visiting hours but she will have rehab during various times. I think they are from 0900-1100 and 1:30- 3:00 or thereabouts. If you go while she is in therapy you may not get to see her, but I think visitors are helpful and she has a nice big room for everyone to be able to relax while there.