Erin is doing okay. She has been pretty stable over the last week. Erin had a barium swallow test to make sure that during speech therapy anything that was going into her mouth was going into her stomach. The results were not what we were hoping for. The test showed that Erin was aspirating instead of swallowing. she was able to cough when this occurred, so at least she can cough when something does go down into her bronchial tree. To make a long story short Erin won't be able to practice swallowing anytime soon. Aspiration would put her at great risk for pneumonia. This is probably our last weekend here at Touro, hopefully we can come back eventually. If Erin improves she can benefit from their great program and staff. Today she has been here 54 days. It has been 80 days since this nightmare started, but we are doing okay and will continue to hold our heads high and take each day as it comes.
I hope that Erin isn't lonely, uncomfortable, in pain, depressed, or anything else unpleasant. It is so hard not being able to communicate to each to each other about what's going on. I just can't stand to think that she needs something and can't communicate it with anyone.
Today a friend of mine went on the radio to promote the fishing tournament that he is helping to organize. He did a great job to spread Erin's story, (Great job Ken). We are so looking forward to a great weekend in the sun with family and friends.
Here is an "old" picture of Erin and her Chapelle classmates with Father Paul at our wedding. Erin is very fortunate to have such loving friends during all of this. I am also fortunate, as they have all taken me in and offered their unconditional support. (that really goes for everyone). Thanks.